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Connecticut Rare Disease Advisory Council (RDAC)

Public Act 22-58, Section 48 established a Rare Disease Advisory Council in the state of Connecticut. The council's purpose is to advise and make recommendations to the Department of Public Health and other state agencies, as appropriate, regarding the needs of persons in the state living with a rare disease and such persons' caregivers. DPH hosts the council for administrative purposes only.

Resources

Current members

Additional information about RDACs in other states can be found on the National Organization for Rare Disorders (NORD) Website. DPH has no affiliation with NORD.

2024 Meeting Schedule

The group currently meets on the fourth Tuesday of each month, unless noticed otherwise. All meetings are publicly noticed on the Secretary of State's Public Meeting Calendar in accordance with the Connecticut Freedom of Information Act. Meetings can be joined via the linked Zoom.

• Apr 23, 2024 02:00 PM - Public Hearing at 1:00 at Yale
• May 28, 2024 02:00 PM - Public Hearing at 1:00 at Jackson Laboratories
• Jun 25, 2024 02:00 PM - Public Hearing at 1:00 at the LOB
• Jul 23, 2024 02:00 PM 
• Aug 27, 2024 02:00 PM
• Sep 24, 2024 02:00 PM
• Oct 22, 2024 02:00 PM - Public Hearing at 1:00pm at Yale
• Dec 10, 2024 02:00 PM - Public Hearing at 1:00pm
  • *this meeting is a special meeting, combining the November and December times.

Past Meeting Information

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