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Connecticut Rare Disease Advisory Council (RDAC)
Public Act 22-58, Section 48 established a Rare Disease Advisory Council in the state of Connecticut. The council's purpose is to advise and make recommendations to the Department of Public Health and other state agencies, as appropriate, regarding the needs of persons in the state living with a rare disease and such persons' caregivers. DPH hosts the council for administrative purposes only.
Resources
Additional information about RDACs in other states can be found on the National Organization for Rare Disorders (NORD) Website. DPH has no affiliation with NORD.
The group currently meets on the fourth Tuesday of each month, unless noticed otherwise. All meetings are publicly noticed on the Secretary of State's Public Meeting Calendar in accordance with the Connecticut Freedom of Information Act. Meetings can be joined via the linked Zoom.
- Apr 23, 2024 02:00 PM
- May 28, 2024 02:00 PM
- Jun 25, 2024 02:00 PM
- Jul 23, 2024 02:00 PM
- Aug 27, 2024 02:00 PM
- Sep 24, 2024 02:00 PM
- Oct 22, 2024 02:00 PM
- Nov 26, 2024 02:00 PM
| Meeting Date | Information |
| 09/11/2023 | Agenda, Minutes, Recording |
| 10/24/2023 | Agenda, Minutes, Recording |
| 11/28/2023 | Agenda, Minutes, Recording |
| 01/23/2024 | Agenda, Minutes, Recording |
| 02/27/2024 | Agenda, Minutes, Recording |
| 03/26/2024 | Agenda, Minutes, Recording |
| 04/23/2024 | Agenda, Minutes, Recording |