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Connecticut Rare Disease Advisory Council (RDAC)

Public Act 22-58, Section 48 established a Rare Disease Advisory Council in the state of Connecticut. The Council's purpose is to advise and make recommendations to the Department of Public Health and other state agencies, as appropriate, regarding the needs of persons in the state living with a rare disease and such persons' caregivers. DPH hosts the council for administrative purposes only.

Resources

2024 Annual Report

Current Members

Additional information about RDACs in other states can be found on the National Organization for Rare Disorders (NORD) Website. DPH has no affiliation with NORD.

Current Meeting Schedule

The group currently meets on the fourth Tuesday of each month from 2:00-3:00pm, unless noticed otherwise. All meetings are publicly noticed on the Secretary of State's Public Meeting Calendar in accordance with the Connecticut Freedom of Information Act. Meetings can be joined via the linked Zoom.

Upcoming meeting dates:

• January 28
• February 25*
• March 25
• April 22
• May 27
• June 23

*February 25 is a special in-person RDAC meeting on the 2nd floor Atrium of the LOB from 8:30am to 11am to celebrate Rare Disease Day 2025.

2025 Meetings

2023 and 2024 Meeting Information

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