CT Birth Defects Registry is the primary source of birth defects/adverse birth outcomes in CT.  The registry actively collects data through the newborn screening program and contains approximately 200 records (annual reporting unknown) since its inception in October 2002.  The registry includes the following demographic information obtained from medical records:  patient name, birth mother’s name and date of birth, address, state file number, race, ethnicity, gender, and date of birth (see Database File Layout pgs 17 – 19 of inventory for detailed database contents).  Aggregate data is available when generated; internal data requests written request to database manager (no patient identifiers); external requests IRB/HIC request (no patient identifiers).